European Reference Networks (ERN) for Rare Diseases with the participation of the Centre for Rare Diseases (ZSE) Ulm
European Reference Networks (ERN)
The ZSE Ulm is involved in the European networks for rare diseases in the networks below
- European Reference Network for Neurological Diseases
ERN-RND
- European Reference Network for Neuromuscular Diseases
ERN EURO-NMD
- European Reference Network for Endocrine Diseases
Endo ERN
Upcoming ERN events can be found under Upcoming Events as well as the link for registration.
Endo-ERN also offers a media library where webinars already held can be viewed afterwards
- European Reference Network for Immunological, Autoinflammatory and Autoimmune Diseases
ERN RIT
- European reference network for haematological diseases
EuroBloodNet
- European Reference Network for Urogenital Diseases
eUROGEN
The ERNs are intended to give patients in all EU Member States access to the diagnosis and treatment of rare and complex diseases. Further information can be found on the following pages:
German Reference Networks (DRN)
In accordance with the structure of the ERNs, there are now also various reference networks at national level. The aim here is to pool the knowledge of centres already involved in the ERNs in order to develop better care at a purely German level.
- Collaboration in the scientific-technical sub-network FTD of the DRN-RND
- Collaboration in the scientific-technical sub-network atypical Parkinson's syndromes of the DRN-RND
- Collaboration in the scientific sub-network Huntington's/choreatiform diseases of the DRN-RND
- Membership in the DRN-RITA - German Reference Network RITA-Net (Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases-Net) in analogy to the European Reference Network (ERN)-RITA for PID, AID and AI
Working Group of Centres for Rare Diseases in Germany (AG-ZSE)
The Centre for Rare Diseases Ulm is a member of the AG-ZSE.