Eye tumours
Rungestr. 19
10179 Berlin
Phone: 030 / 28 53 870
Fax: 030 / 285 387 271
info@blickpunkt-auge.de
www.blickpunkt-auge.de
Lange Str. 3
70173 Stuttgart
Phone: 0711 / 210 600
Fax: 0711 /21 06 099
vgs@bsv-wuerttemberg.de
www.bsv-wuerttemberg.de
District groups:
Alb-Donau-Riss, Lake Constance, Esslingen, Göppingen, Neckar-Alb-Sigmaringen, Ostalb, Ravensburg, Schwäbisch Hall, Stuttgart
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 -251 or 252
Fax: 0228 / 33 889 253
bgs@adp-bonn.de
www.adp-bonn.de
Regional groups:
Stuttgart/Ludwigsburg, Ravensburg
TEB e. V. Selbsthilfe is a self-help organisation operating throughout Germany for patients with pancreatic tumours/diseases and offers those affected help, advice and information on the latest medical findings and personal exchange.
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Karlstr. 42
71638 Ludwigsburg
Phone: 07141 / 95 63 636
geschaeftsstelle@teb-selbsthilfe.de
www.teb-selbsthilfe.de
Regional groups:
Allgäu-Schwaben, Bodensee-Oberschwaben, Lauter-Fils, Mittlerer Neckarraum, Schönbuch
The German ILCO e. V. is the largest German self-help organisation for people with an artificial bowel outlet or artificial urinary diversion (stoma) - including those who have had their bowel moved back - as well as people with bowel cancer and their relatives.
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Federal office
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 450
info@ilco.de
junge.ilco@ilco-kontakt.de
40plus@ilco-kontakt.de
www.ilco.de
www.facebook.com/DeutscheILCO.de
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Baden-Württemberg State Association
Kriegerstr. 3
70191 Stuttgart
Phone: 0711 / 64 05 702
ilco-stgt@t-online.de
bw.ilco.de
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State Association of Bavaria
Phone: 09433 / 202 790
bayern@ilco-kontakt.de
bayern.ilco.de
Since 1998, the LebensBlicke Foundation has been committed to providing the public with comprehensive information about the possibilities of early detection of bowel cancer and motivating them to take part in the measures on offer. It does this in particular through public relations work in print and electronic media, nationwide events via a network of regional representatives and through intensive participation in the central Bowel Cancer Awareness Month in March each year.
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Schuckertstr. 37
67063 Ludwigshafen
Phone: 0621 / 69 085 388
Fax: 0621 / 69 085 389
stiftung@lebensblicke.de
www.lebensblicke.de
Gynaecological tumours
Frauenselbsthilfe Krebs - Bundesverband e. V.
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 400
Fax: 0228 / 33 889 401
kontakt@frauenselbsthilfe.de
www.frauenselbsthilfe.de
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Frauenelbsthilfe Krebs - Landesverband Baden-Württemberg/Bayern e. V.
Haldenweg 23
88682 Salem
Phone: 07553 / 82 86 820
Fax: 07553 / 82 86 819
www.frauenselbsthilfe-bw.de
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Groups:
Augsburg, Bad Saulgau, Biberach, Bopfingen, Ehingen, Göppingen - young people, Heidenheim, Isny, Constance, Markdorf/Lake Constance, Meersburg, Münsingen, Ravensburg, Tettnang- Meckenbeuren, Ulm
Association for the preservation of breast health and the cure of breast cancer
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Neue Kaiser
Neue Mainzer Str. 31
60311 Frankfurt am Main
Phone: 069 / 678 653 812
info@aktionpink.de
www.aktionpink.de
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 100
Fax: 0228 / 33 889 110
info@brca-netzwerk.de
www.brca-netzwerk.de
Lise-Meitner-Str. 7
85662 Hohenbrunn
Phone: 089 / 41 619 800
Fax: 089 / 41 619 801
online@brustkrebsdeutschland.de
www.brustkrebsdeuschland.de
Self-help organisation for women (and men) with breast cancer
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Max-Hempel-Str. 3
86153 Augsburg
Phone: 0821 / 26 841 910
Fax: 0821 / 26 841 911
info@mamazone.de
www.mamazone.de
Breast cancer is very rare in men. This makes it all the more important to network the few men affected and to campaign for their interests. This is precisely why the network Männer mit Brustkrebs e. V. was founded under the umbrella of Frauenselbsthilfe Krebs.
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Barnkurger Str. 44
21706 Drochtersen
Phone: 04148 / 53 41
kontakt@brustkrebs-beim-mann.de
www.brustkrebs-beim-mann.de
Wranglerstr. 12
24539 Neumünster
Phone: 0800 / 58 92 563
info@eskd.de
www.eskd.de
www.gynäkologischer-krebs-deutschland.de
Groups:
Baden-Württemberg (Online), South-East (Online)
Skin tumours
The Skin Cancer Network Germany e. V. (HKND) was founded in 2016 and aims to help, educate and represent the interests of skin cancer patients as a patient organisation. On the HKND website you will find links to many other skin cancer self-help groups.
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Am Krankenhaus 1a
21614 Buxtehude
Phone: 04161 / 55 47 901
info@hautkrebs-netzwerk.de
www.hautkrebs-netzwerk.de
Groups:
Selbsthilfe Hautkrebs Berlin, Selbsthilfe Hautkrebs Freiburg
Ardeystr. 12
45134 Essen
Phone: 0178 / 72 13 982
info@melanominfo.com
www.melanominfo.com
Groups:
YOKO Skin Cancer Nuremberg, YOKO Kempten/Bodenseekreis, YOKO Munich
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 200
Fax: 0228 / 33 889 222
info@leukaemie-hilfe.de
www.leukaemie-hilfe.de
Groups:
Lindau, Schwäbisch Gmünd, Stuttgart
Siemensstr. 4
53121 Bonn
Phone: 0228 / 24 982 813
Fax: 0228 / 24 982 828
info@stiftung-dlh.de
www.stiftung-dlh.de
For people with myeloproliferative neoplasms and their relatives
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Siemensstr. 4
53121 Bonn
Phone: 0800 / 67 66 389
kontakt@mpn-netzwerk.de
www.mpn-netzwerk.de
Groups:
Allgäu, Augsburg, Heilbronn, Kirchheim/Teck, Munich, Ulm
Brain tumours
Nationwide organisation offering help for brain tumour patients and those affected by brain metastases. The association supports projects such as the nationwide central brain tumour information service and the online brain tumour forum. Through IKOS Neurooncology, self-help activities are supported and contacts are made with people affected by the same condition.
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Karl-Heine-Str. 27
04229 Leipzig
Phone: 0341 / 59 09 396
info@hirntumorhilfe.de
www.hirntumorhilfe.de
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Brain tumour information service
Phone: 03437 / 702 702
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Internet forum
forum.hirntumorhilfe.de
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IKOS Hirntumor
(Information and contact point for brain tumour self-help activities)
Phone: 03437 / 99 96 868
Pituitary and adrenal gland diseases
Since 1994, the network has been working on the exchange of information about pituitary and adrenal gland diseases between those affected, their families and doctors. Over the years, a far-reaching, even international network has developed.
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Waldstr. 53
90763 Fürth
Phone: 0911 / 97 920 090
Fax: 0911 / 979 200 979
netzwerk@glandula-online.de
www.glandula-online.de
Groups:
Augsburg, HITS Ulm, Ingolstadt, Stuttgart
Head, neck, mouth and facial tumours
The term head and neck tumours covers various types of cancer that occur in the head and neck area (lips, tongue, palate, oral cavity, salivary glands, throat, jaw, larynx, nose, paranasal sinuses).
The self-help network Kopf-Hals-M.U.N.D.-Krebs e. V. is an initiative of cancer patients in Germany with the guiding principle "Those affected for each other and with each other for a better quality of life". The network supports people suffering from a head and neck tumour and their relatives.
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Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 280
Fax: 0228 / 33 889 288
info@kopf-hals-mund-krebs.de
www.kopf-hals-mund-krebs.de
Regional groups:
Karlsruhe, Munich, Stuttgart
Bundes-Selbsthilfevereinigung für Hals-, Kopf- und Gesichtsversehrte
T.U.L.P.E. = ob Tumoroder Unfall- Lebenmit Perspektivenund Epithese
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The Bundesverband der Kehlkopfoperierten e. V. (Federal Association of Laryngectomees) sees itself as a central contact point for laryngectomees, laryngectomees, throat breathers, throat and larynx cancer sufferers and their relatives.
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Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 300
Fax: 0228 / 33 889 310
geschaeftsstelle@kehlkopfoperierte-bv.de
www.kehlkopfoperiert-bv.de
Sections:
Allgäu-Bodensee-Oberschwaben, Böblingen, Ostalb-Aalen, Pforzheim, Ulm/Neu-Ulm
Sections:
Freiburg-Breisgau-Hochschwarzwald, Hochrhein-Wiesenthal, Konstanz-Singen-Hegau, Ortenaukreis-Kinzigtal, Schwarzwald-Baar-Heuberg
Lung tumours
Rotenkruger Weg 78
12305 Berlin
Phone: 0160 / 90 671 779
info@bundesverband-selbsthilfe-lungenkrebs.de
www.bundesverband-selbsthilfe-lungenkrebs.de
Röntgenstr. 1
69126 Heidelberg
info@lungenkrebs-bw.de
www.lungenkrebs-bw.de
www.bundesverband-selbsthilfe-lungenkrebs.de
www.lungcancereurope.eu
Group:
Stuttgart
Contact: Augsburg Psychosocial Cancer Counselling Centre of the Bavarian Cancer Society e. V.
Schießgrabenstr. 6
86150 Augsburg
Phone: 0821 / 90 79 190
brs@bayerische-krebsgesellschaft.de
Patient network for personalised lung cancer therapy
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info@zielgenau.org
www.zielgenau.org
Neuroendocrine tumours
Netzwerk Neuroendokrine Tumoren (NeT) e. V. is a self-help organisation that is active at regional, national and international level. The main objectives of the organisation are the exchange of information among those affected and the provision of information about the disease.
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Wörnitzstr. 115a
90449 Nuremberg
Phone: 0911 / 25 28 999
Fax: 0911 / 25 52 254
info@netzwerk-net.de
www.netzwerk-net.de
Regional groups:
Freiburg, Swabia, Stuttgart, Tübingen and Ulm
Sarcomas are malignant tumours that can occur anywhere in the body. Sarcomas, of which more than 200 subgroups are known, can be divided into two main groups, soft tissue and bone sarcomas.
The German Sarcoma Foundation is a joint organisation of patients and experts. It is committed to improving the situation for sarcoma patients in Germany.
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Caspar-Bender-Weg 31
61200 Wölfersheim (Södel)
Telephone patient support: 0700 / 48 840 700
info@sarkome.de
www.sarkome.de
The association sos-desmoid e. V. is a nationwide patient organisation and is the point of contact for patients suffering from aggressive fibromatosis/desmoid tumours and their relatives.
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Gadheim 30
97209 Veitshöchheim
info@sos-desmoid.de
www.sos-desmoid.de
The Chordoma Foundation works internationally to help people suffering from chordoma. The foundation has its own information service, an internet forum and puts people in touch with other sufferers via its patient network.
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deutschland@chordomafoundation.org
www.chordomafoundation.org
Gastrointestinal stromal tumours are soft tissue sarcomas in the gastrointestinal tract. They occur most frequently in the stomach and cause non-specific symptoms.
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Thyroid tumours
The non-profit, nationwide self-help organisation brings together people who have to live without a thyroid gland, especially after a cancer diagnosis.
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Rungestr. 12
10179 Berlin
Phone: 01805 / 646 373
info@sd-krebs.de
www.sd-krebs.de
Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 150
Fax: 0228 / 33 889 155
info@blasenkrebs-shb.de
www.blasenkrebs-shb.de
Groups:
Allgäu, Lake Constance, Mainz Pouch Group Karlsruhe, Stuttgart, South Baden-Freiburg
The Kidney Cancer Network Germany e. V. is an organisation by patients for patients. The focus is on personal support for kidney cancer patients and their carers.
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Untergasse 36
61200 Wölfersheim
Phone: 0800 / 58 85 800
info@nierenkrebs-netzwerk.de
www.nierenkrebs-netzwerk.de
Group:
Stuttgart
Self-organisation for men suffering from prostate cancer. Around 180 self-help groups currently belong to the federal association.
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Thomas-Mann-Str. 40
53111 Bonn
Phone: 0228 / 33 889 500
0228 / 33 889 510
info@prostatakrebs-bps.de
www.prostatakrebs-bps.de
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Prostate Cancer Self-Help Baden-Württemberg - Rhineland-Palatinate and Saarland g. V.
info@prostatakrebs-lps-bw.de
www.prostatakrebs-lps-bw.de
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Groups:
Bad-Buchau - Federsee, Friedrichshafen, Oberes Schussental, Bad Saulgau, self-help group Prostatakrebs Stuttgart g. V., Ulm. V., Ulm
procas-in@online.de
Phone: 07072 / 60 756
info@shg-prostatakrebs-reutlingen-tuebingen.de
www.shg-prostatakrebs-reutlingen-tuebingen.de