The Clinical Cancer Registry at the CCCU (KKR) is a facility-based registry and has the task of documenting all tumour patients diagnosed and treated at Ulm University Hospital as completely as possible, regardless of where the patient lives. The documentation is carried out centrally using the CREDOS tumour documentation system and follows the specifications of the ADT/GEKID dataset (diagnosis, course of disease and therapy). This data is necessary for the legally required reporting to the Baden-Württemberg State Cancer Registry. In addition, organ-specific data is collected for quality assurance in the organ centres. The scope of the additional data collected is based on the specifications of the specialist societies and the German Cancer Society (DKG). The aim is to ensure the quality of treatment of cancer patients at Ulm University Hospital. This is only possible if sufficient completeness (>90%) is achieved.
Analyses for quality assurance include
- The review of compliance with guidelines (S3)
- Review of the success of therapy
- Benchmarking (comparison with other clinics)
In addition, the Cancer Registry at the CCCU offers the following services:
- It supports the co-operating departments of the CCCU in the implementation of clinical-scientific research projects.
- Determination of the vital status. This is the prerequisite for calculating survival times.
- It reports the data to the State Cancer Registry in accordance with the requirements of the State Cancer Registry Act, which forwards the data to the Robert Koch Institute.
- It carries out individual analyses for the departments.
Due to the lack of reference to the population, the CCCU's CCR cannot answer any epidemiological questions. Analyses relating to cities, regions or the federal state can only be prepared using data from the Baden-Württemberg State Cancer Registry.
