Links and addresses
Below you will find further helpful addresses such as centres for rare diseases in Germany and other organisations that can provide you with information on the subject of "Rare diseases".
Self-help and family groups at Ulm University Hospital
Our specialist centres and facilities at Ulm University Hospital work closely with self-help groups. You can obtain further information directly from the relevant department.
Centres for Rare Diseases in Germany
- Centre for Rare Diseases Aachen (ZSEA)
- Berlin Centre for Rare Diseases (BCSE)
- Centre for Rare Diseases Ruhr (CeSER)
- Centre for Rare Diseases Bonn (ZSEB)
- University Centre for Rare Diseases (USD) Dresden
- Centre for Rare Diseases at the University Hospital Düsseldorf (ZSE UKD)
- Centre for Rare Diseases Essen (EZSE)
- Frankfurt Reference Centre for Rare Diseases (FRZSE)
- Freiburg Centre for Rare Diseases (FZSE)
- Centre for Rare Diseases (ZSE) Göttingen
- University Centre for Rare Diseases (ZSE) Hamburg
- Centre for Rare Diseases (ZSE) Hanover
- Centre for Rare Diseases (ZSE) Heidelberg
- University Centre for Rare Diseases (ZSE) Leipzig
- Centre for Rare Diseases (ZSE) Lübeck
- Centre for Rare Diseases of the Nervous System (ZSEN) Mainz
- Central German Competence Network for Rare Diseases (MKSE)
- Centre for Rare Diseases (ZSE) Mannheim
- Centre for Unrecognised and Rare Diseases (ZUSE) Marburg
- Care for Rare Centre (CRCHauner) Munich
- Centre for Rare Diseases (ZSE) Münster
- Centre for Rare Diseases (ZSE) Regensburg
- Centre for Rare Diseases (ZSE) Tübingen
- Centre for Rare Diseases (ZSE) Wiesbaden
- Centre for Rare Diseases (ZSE) Würzburg
Other helpful websites
- Achalesia
- Alliance of Chronic Rare Diseases (Achse e.V.)
- German Neurofibromatosis Association
- Care-for-Rare Foundation
- German Dystonia Society e.V.
- German Society for Muscle Diseases e.V.
- German Huntington's disease support organisation
- German Myasthenia Society e.V.
- dsai e.V. - Patient organisation for congenital immunodeficiencies
- ELA Germany e.V.
- European Commission
- Eva Luise and Horst Köhler Foundation
- Pituitary and Adrenal Gland Diseases e.V.
- Fabry Competence Centre
- LAG KISS
- NAMSE - National Action Alliance for People with Rare Diseases
- NetsOs - Network for Rare Osteopathies
- Cystic Fibrosis Support Association Ulm e.V.
- Orphanet
- Polyneuropathies
- pulmonary hypertension e.v.
- Self-help office KORN e. V.
- Scleroderma Self-Help Association
- Care atlas for people with rare diseases